Tuesday..more tests..

We are at Nortwestern. Mary's trip to Houston will be next month and they are letting us do our appt here in Chicago and just send the results to Houston. Evidently, if you are responding and doing fairly well they then let you go every 2 months. We will be there in December to See Dr. amato and have more scans. Mary did not sleep well last night. She never does before a scan...thus I do not either. Her mind races with all the possibilities......I just keep thanking God for continued response to the medicine and to all the other things we are doing. I saw Dad this weekend.....we had a very nice visit and he remembered me straight away. We sat and held hands and had a talk about stuff......he very coherently told me that I would be alright and that he loved me. It was a blessing and I am very grateful to have those words from him. He has failed dramatically since my last visit. I just ask that he slip away in his sleep...that there be no more drama for him because he deserves integrety and gentleness....what he was always known for in this life. I put him to bed...and was able to sing his favorite song to him. He sighed gently as he feel to sleep. I could not have asked for more. Mom had a bad cold but the pot of garlic chicken soup seemed to help as well as a bust up boat load of pranic healing late at night. The weekend away was good and I feel more rested and relaxed getting a couple of good nights of sleep. Mary and I go to sleep about 10 pm. I ususally get up about 7 and she usually needs to stay in bed to 10am or 11am. She is up alot at night either taking pain pills or peeing. I hold the covers up for her when she gets back into bed. I think I do it in my sleep. I'm always listening with one ear open. Pearl has taken to cuddling me at night. She is either on the pillow next to my head, on top of my stomach....if I'm on my stomach she sleeps on my lower back...it is kind of like she is attached and I find it very comforiting. Well, Mary is out of her PFT's ....we are off to blood draws and infusion. xoxox lg